And Just Like That I was a Mom.

Throwback Thursday – Life Before LCA.

I knew I was pregnant before I saw those pink lines. I don’t know how but I just did.

I was only 18. I was on birth control. I was in university and living with my parents still. My relationship wasn’t the most stable and I wasn’t sure how he’d react but I knew what I wanted to do the second the thought popped into my mind.

I remember taking the test upstairs in the bathroom during my youngest sister’s birthday dinner. It didn’t look like anything was there so I threw it out. When I came back later to really get rid of it so no one saw, there looked to be a second line. And even though the box says to disregard anything past 10 minutes, I knew I shouldn’t.

I waited a couple days and decided to take another test. This time in the university bathroom right before my statistics final. It was a blazing positive. And although I really had thought I was pregnant, my mind was spinning. I couldn’t focus at all and I ended up walking out of the exam.

I told my boyfriend at the time and his response was mostly denial. Even after I saw a doctor at the University he didn’t believe me. For some reason he thought we couldn’t be “sure” until the 12 week ultrasound they had booked for me that was still weeks away.

Photo of Melissa laying on her back showing the profile view of her pregnant belly. There is a gifaffe stuffed animal resting on her stomach.
Baby Bump.

He begged me not to tell anyone and went on living as though there was nothing to worry about. Luckily I wasn’t that uninformed and I made sure to take care of myself and not do anything that could be harmful. But I let him pretend that there was nothing going on, I don’t know why, looking back I think it was to save myself the headache.

I went to the 12 week ultrasound alone. Everything I had done at that point had been alone. I had cabbed from work and made up some excuse to my dad who usually picked me up. And then had made plans to meet my boyfriend after work at a restaurant.

When I slid the picture across the table you would have thought I never uttered a word about the possibility of a pregnancy. He was honestly shocked. I can’t help but laugh at that image in my mind now wondering how he could really be so naieve.

After that things got stressful. Not physically. I had barely felt any nausea or really any symptoms at all. But emotionally things were hard. He wasn’t particularly excited about the situation and he was very clear that it was to be kept a secret until a decision was made. Although I made it very clear from the start that my decision was already made.

The next couple months were full of secrets. I had to sneak out of work again to go get my 18 week ultrasound. I could only share the news of finding out I was having a girl with my best friend. It was a lonely and confusing time.

Then around 20 weeks I remember sitting on the couch and my pajama shirt riding up a little. My mom made a comment about me looking a little bloated and tried to touch my stomach. I all but jumped out of my skin. Terrified the baby would kick at the exact wrong time.

Knowing that the jig was almost up I told my boyfriend it couldn’t wait any longer. I was starting to show and it was getting too far along. His first response when I said I was going to tell them was that he should just leave town back to his mom’s since they’d be so mad (sometimes I wish I told him to go but I know that is selfish). After some thought he decided to stay but he came up with a story that I was expected to follow. To keep the heat on myself. I was to tell them that I just found out a few weeks before and that I had just told him that day. And because I felt like I had no choice and I didn’t know how to explain why I’ve been hiding it for 5 months, I told the story.

When I told my mom I was pregnant she said “Are you sure?”. Oh yes I was sure. But from the very first night I told them, they were supportive. They never tried to make me feel bad or like I was disappointing them.

The following months were fairly calm. When my seasonal job ended I started working at a maternity store that gave employees a big discount. I was in university and still attended classes. I celebrated my 19th birthday quietly at home. And I did what was needed to prepare to bring home a baby. My parents never pressured me to move out or drop out of school. They helped me rearrange things in the house so that we would be able to mainly have the basement space as our own. I bought a TON of baby gear during baby days at Toys R’ Us and my mom threw me an amazing baby shower where people really spoiled us.

photo of Melissa cradling and looking down at her baby bump smiling.
Baby Shower Day!

For that period of time it seemed as though everyone (including my boyfriend) was on board and excited for the new arrival. I was starting to feel prepared.

I was due on December 22nd but I really didn’t want to be in the hospital for Christmas. One because that didn’t sound like a great way to spend my Christmas and two because I didn’t think sharing your birthday with Christmas would be very fun.

But nine days before my due date I remember slightly waking up to a weird popping sound just before 6 in the morning and as I laid there for a minute I started to feel the gushing. My water had broke.

Being my first baby, and being 19, I had no idea what to expect. I thought your water just breaking was really only a thing that happened in shows. Everyone I had known made it seem like there was hours of contractions before their water maybe broke or that the doctors had to do it for them. So when I woke up to that with no previous signs of labor I definitely went back to feeling unprepared.

I still remember how much water it was. I never thought it would be SO much. And I remember being confused about where the pain was. Oh those innocent 15 minutes before my first contraction hit haha. I was changing in the bathroom telling my mom I didn’t really feel anything when I got the first one. It hit me out of nowhere and it was long. I started having contractions 5 minutes apart and 1 minute in length from the very first one. Since I was struggling and my water had already broke we decided to head to the hospital pretty quickly.

I had to stop several times in the hallways to fold myself into a ball and struggle through the contractions. When we finally got to the right floor they told me to go change and then they would check how dilated I was. Since I was only 38 weeks and my doctor was pretty hands off I had never had a cervical check before. The nurses face when she checked looked so confused I started to feel embarrassed. All I was thinking was that here I am this little 19 year old folding over in the hallway in unbearable pain and I’m probably not even dilated yet and am about to be sent home to wait.

But I definitely misread that confusion as my triage bed was quickly rolled down the hall and nurses were trying to set up so quickly they were dropping the sterile tools on the ground in a panic. I was dilated to 9 cm.

I was scared because my mom was still downstairs registering me and I wasn’t prepared to have a fully natural delivery. Luckily I was saved that fear when the OB came and checked me and told me that we were gonna be awhile since the baby was facing the wrong way. So even though I was already 9 cm I was allowed to receive an epidural and we weren’t in a hurry.

After that things were pretty calm for being in active labor. The epidural made the contractions barely noticeable. It was a few hours until I was told I could start pushing. It was just the nurse, my mom, my boyfriend, and me. When I was close to delivering they brought in the doctor (and six interns) and I was still pretty heavily numb. The epidural caused some struggles with delivery because I couldn’t tell when was the most effective time to push (during contractions) but soon enough she was here.

On December 13th 2013 at 2:23pm, Hailey Olivia was born.

Photo of newborn Hailey swaddled in a pink blanket laying in the hospital bassinet.
Hailey Olivia.

And just like that I was a mom.

Thank you for following our journey!

The Time I Fainted in a Wedding Dress.

Throwback Thursday – Life Before LCA.

Have you ever thought back on a moment in time and been completely blown away wondering how you ended up at your current state. That sums up my second pregnancy.

If you told me everything that was about to happen when I peed on that stick in that public washroom waiting on my fate I probably wouldn’t have believed you.

We were young and in love. Maybe a little too consumed with the thoughts of our future but I wouldn’t change any of it because of where it lead us. See something most people think (sorry Mom) is that Charlotte was a surprise.

Ultrasound photo at 12 weeks gestation with Charlotte.
Baby Charlotte.

Well, that’s not exactly the case…

I had an IUD but it failed, I found out I was expecting in February 2017. And after shock, many tears and more worry then it was worth I learned I was in a very different relationship than my past one. James was supportive and even a little happy. But then as plans and dreams swirled in our minds we lost the baby.

And although it was maybe a little rash we decided we didn’t want to say goodbye to those plans and dreams, and by April I was pregnant again. But this time there was no shock and no tears. And not enough worry haha.

I quite quickly learned this pregnancy wasn’t going to be the easy breeze that my first one was physically (massive understatement). I had horrendous morning (all day) sickness, just moved out of my parents house with Hailey, just started a practicum for school, I was tired and always sick. And then the depression hit me.

I had thought I went through periods of depression before but they were nothing compared to this. It is probably the most unhappy I have ever felt in my life. And it was scary, not just for me but for James. This whole plan we had imagined wasn’t working out like we thought.

And then it got worse.

Photo of Melissa holding a "Lil Sis" baby onesie in front of her pregnant belly standing beside Hailey wearing a "Big Sis" shirt.
Sisters.

One day I was sitting on the couch watching a show before I had to leave for class and I felt a gush. Panicked I ran to the washroom prepared to see blood. But it wasn’t blood, it was more like water. My mom took me to the hospital where I tested positive for amniotic fluid and was told to prepare for the worst. At only 16 weeks there is no way a baby could survive birth.

We got wheeled off to an ultrasound and almost immediately were relieved when my little bean was wriggling away in there doing just fine. And because she could see how nervous and upset I was the nurse even shared with me that it was a girl.

After that there were more questions than there were ever answers. I was put on modified rest (I could still attend school and do light walking) for two weeks to wait for the anatomy scan and left without any reassurance that this pregnancy was going to continue.

Getting antsy doing nothing and being home mostly alone all the time was getting to me. So one day I thought I would take just a little trip out of the house to try on some wedding dresses (we were engaged at the time) I liked and to try to get some happy hormones going.

I didn’t really tell anyone where I was going because it was the middle of the day and I was planning to be home within a couple hours at most. I texted my closest friend a picture of me in my favorite dress impressed it still fit okay… and then I started seeing black dots. It felt like minutes but it was probably much less. I told the worker I wasn’t feeling good and as she came to walk me to a chair I fainted.

The next hour or so I only remember in small pieces of consciousness. I remember the firefighters and EMT arriving, although I didn’t see any of them, one of their voices sounded so much like Sandra Bullock haha. I remember them lifting me and pulling me out of the wedding dress while I was still mainly out. And I remember as I came to that I couldn’t move one side of my body.

Melissa standing in a wedding dress cradling her baby bump.
The time I fainted in a Wedding Dress.

I remember the urgency of the EMT when they radioed that they had a pregnant 22 year old having signs of a stroke. I remember how fast we were going turning a 30 minutes drive into a little less than 15 minutes. And all I could think about was Hailey and how no one knew where I was.

I had so many people around me immediately upon arrival. I remember the frustration I felt when I couldn’t lift my leg. I remember the feeling of my earrings being ripped out. I remember the claustrophobia I felt in the MRI machine unable to move.

And then I remember the sudden calm. It wasn’t a stroke. (I would later find out it was a hemiplegic migraine causing neurological symptoms).

And as much as that day still goes down as my most embarrassing day it was the push they needed to get me into more monitoring.

I started with the high risk OB clinic and had appointments weekly; one week with the OB, the next week with maternal fetal medicine for ultrasounds. They discovered the cause of my waters leaking. Something called a Chorioamniotic separation, the chorion layer and amnion layer of the placenta had separated from each other which leaves the baby sort of “free floating” in the placenta. The biggest risk they told us was that amniotic bands could form and could cause strangulation to limbs or worse case scenario to the baby herself. Due to the risk we were offered a medical late term abortion (I was over 20 weeks at this point). But we didn’t want that. So knowing the risk we decided to hope for the best.

The stress was immense. We would be monitored by ultrasound to watch fluid levels and growth and to look for any signs of amniotic bands forming. They told me if I made it to 24 weeks and she had to be born that there would be a fighting chance. And so every day became a challenge to get one day closer to viability.  

I struggled for months with threatened preterm labor. If it wasn’t contractions, it was fluid leaking. I think most of the nurses in Labor and Delivery knew us by name we were there so often.  We had steroid shots for Charlotte’s lungs. We did some time on the prenatal ward. But we were making it through, viability came and went and she was still in there growing away.

Then on Thanksgiving I felt like I had got a UTI. What’s the big deal? Well unfortunately a UTI in pregnancy can lead to contractions and preterm labor. So in we went again. A quick check and a prescription later we were sent on our way. But a couple days later the pain had gotten much worse.

Photo taken from Melissa's prespective looking down at her baby bump and arm with IV in it receiving medication.
IV Treatment.

Back in L&D for the thousandth (or so) time we learned that my UTI was resistant to the type of antibiotic they gave me and it had travelled to my kidneys. I was admitted and put on a harsh antibiotic (my options were limited because of allergies and my pregnancy). I got released on my birthday but as everything in this pregnancy it didn’t end there.

This kidney infection just wouldn’t go away and it was causing preterm labor contractions. So in the end it was decided I would do some at home IV treatment for a few days to try and kick it for good. Well a few days turned into 10 but I was finally declared infection free.

After that I had maybe a handful of peaceful days before I ended up back in L&D but this time it wasn’t for the infection. I was having contractions and they felt REAL. And they were. I was dilating and it seemed like I was progressing into active labor. But at only 34 weeks they didn’t want to touch it. This meant that I was too far along for them to give me the drugs to attempt to stop the contractions, but since I wasn’t term they also didn’t want to do anything to encourage the labor to progress. This resulted in three days of consistent contractions with no real pain relief and no end in sight. As much as I knew it was better for her to stay put I couldn’t help but feel a tad of resentment to the 10 to 12 women I saw come and go with their babies.  

Things finally hit a plateau and after some very emotional begging they allowed me to go home. I mean at this point I was seeing my high risk OB twice a week.

The days following that adventure were some of the calmest. I attended school (yeah I was still attending college this whole time), and we took Hailey on a family date to zoo lights which is a night I will always treasure. Things were going okay at the beginning of the next week and James job was slow so he decided to go work for the day with his Dad about an hour and a half away. I had an OB appointment in the morning and then classes in the afternoon so I was going to be checked up on and busy.

When I went to my OB I learned that baby girl was breech again (she kept flipping) and was told that if she stayed that way we would need to do a c-section.  Everything else looked okay, I hadn’t dilated anymore than I was previously, and I was feeling pretty good. When I asked the OB if there was anything I needed to do before our next appointment in two days she just said “stay pregnant”…ha if only it were that easy.

I went home from my appointment and decided I would take a nap before school and awhile later I woke up in a panic. I couldn’t quite place why but as I laid there for a few minutes I realized I wasn’t feeling movement from my usually very active baby. So I continued to lay there. I pushed at my belly, I drank something sugary, and I waited. Still nothing. I knew the drill was 6 movements in two hours so as I drew closer to that mark with no signs of movement I decided to go get checked out.

I was almost embarrassed to show up at L&D since I had been there so often and I had just been checked a few hours before at my OB office. And that embarrassment grew when she started moving around a ton the minute they attached the monitors. But due to my pregnancy history they decided to keep me for a couple hours. I sent James a text that my mom took me in, we were all good, and that I’d let him know if I was still going to be at the hospital when he got back to the city.

Photo of Melissa holding Charlotte on the operating table after her c-section.
Meeting Charlotte.

It was getting close to the end of my monitoring when all of the sudden monitors started sounding alarms and my little area was filled with doctors and nurses telling me to move into different positions. The baby’s heart rate had dropped dramatically. It went back up fairly quickly but they decided that added a couple more hours to my monitoring so I sent James a text that I would likely still be there and that he could come replace my mom when he was back.

I sent my mom to the car to grab my phone charger and I got to take a quick break from the monitors to go pee (I was 35 weeks pregnant after all) but when I came back to the room it happened again. It still went back up but the doctor, one who had been the recipient of my emotional begging to go home the previous week, decided that he was no longer comfortable waiting and that I would undergo an emergency c-section in an hour. Sooner if it dropped again.

My head was spinning. I was terrified of the thought of a c-section. And I was alone. My mom was away getting my charger; James was over an hour from the city. I wasn’t prepared for this when I went in (although that sounds silly after everything).

I had to call James and tell him that he would likely miss the birth of his daughter. I could barely keep it together I was so scared. I had to call Hailey and tell her mommy wasn’t coming home tonight because she was having the baby early. And then I just sat there and panicked until they walked me to the OR.

When I got there I was surprised at how bright it was and how small the table seemed. There were a lot of people. Doctors and nurses for the surgery and the NICU team. My mom had to wait outside until they began.

The freezing needle wasn’t as scary as I was expecting but when they told me they were going to start and I could still feel my toes my heart jumped into my throat a little. But I didn’t feel anything…well I felt stuff but not pain. The best description I have ever heard of a c-section is that it’s like unpacking a suitcase, and you are the suitcase.

I was much calmer when my mom got to join me so I wasn’t alone, and I was happy they allowed her to video the moment Charlotte was born so James could see it.

And so on November 28th 2017 at 7:30pm at 35 weeks and 3 day’s gestation my little 6lbs 3 oz Charlotte Grace was born.

The pregnancy and birth experience were nothing like the plans and dreams we had in our mind for it but the entire struggle was made worth it when we finally got to hold our little girl together. That part of the dream came true.

Photo of Melissa holding newborn Charlotte on her chest beside James. Taken in the NICU when we first got to be all 3 together.
Finally.

Thank you for reading our story and joining us on this journey!

Our Baby Boy

Throwback Thursday – Life before LCA.

We decided on three kids early on. We also decided we wanted to try to not make the end of the year anymore expensive than it already was so we’d aim for a spring baby this time haha.

The plan was to try from August to November and if it didn’t happen then we’d wait till the next year. But on August 21 2018 I decided to take a pregnancy test I had at home. I don’t know why I chose to, I hadn’t missed my period yet and I wasn’t feeling any sort of way. I just took it one evening after dinner. And it was positive.

I wasn’t shocked exactly but I was surprised. I didn’t really have the feeling I was pregnant that I had with my girls.  So I went downstairs where James was playing with 8 month old Charlotte and tossed him the test. Baby number three was on it’s way.

Photo of a card. The top is a picture of Hailey and Charlotte. The bottom reads "Hailey and Charlotte. Big sisters to be. To baby number three.".
Announcing our pregnancy.

The nausea hit pretty quickly but luckily it was mild compared to how I felt with Charlotte. The baby bump though? That hit even quicker. By number three my body just assumed position.

At my first ultrasound I was dated to be due on May 2nd. A true spring baby. But anxiety of Charlotte’s early delivery had me doing the math to be prepared for a baby at the end of March.

I was high risk this time due to my eventful second pregnancy and since it would be just under 18 months since my emergency c-section, I decided I would schedule a c-section this time.

I was followed earlier and more often by the same high risk OB as before but she said she felt my energy was different this time and that it would be a smoother road. And it was for the most part.

At 16 weeks I decided to sneak away during my lunch break at work to go for a early scan to find out the sex of the baby. I knew James would be happy either way but I also knew having a boy for our last baby would be the cherry on top. I had a feeling it was a boy but I couldn’t cling to it because there were no boy’s in this generation of our family. We have two girls, and 7 nieces between us. So when the ultrasound tech found it was a boy I was elated. We were having a son, and the first grandson on either side.

That night I gifted James a little newborn varsity jacket and baby size football. He couldn’t wait for his baby boy.

photo of a blue backdrop with a blue and white newborn varsity jacket that has an ultrasound picture laying on top of it. Under the jacket is a baby sized football.
It’s a Boy.

After that things were pretty calm for a while. We started to plan his room theme, Batman, and we picked out his name. It was a nice change of pace from my second pregnancy. But I still had that anxiety in the back of my mind about an early delivery.

As I started getting closer to the end I noticed I felt a lot heavier this time. My belly was bordering on painful to carry around. It was low and massive. I was measuring 7 weeks ahead by fundal height. So off to another ultrasound, the one where I figured the other shoe would drop.

But it came back all good. I had a big baby in there (no surprise as Charlotte was too) and my fluid level was teetering on polyhydraminos (too much amniotic fluid) but not over the cusp where worry should set in…but it did. The extra fluid and the heavy baby had me having contractions on and off almost daily when I was still only 30ish weeks along. I tried to remain positive that I would make it to at least 37 weeks, my personal goal, but I also prepared not to.

Then on St. Patrick’s Day (March 17) at 33 weeks and 3 days the contractions became increasingly painful and weren’t letting up. I knew they weren’t Braxton hicks (practice contractions) and I was terrified. That was 2 weeks more premature than Charlotte. I went to L&D still hoping to be told I’m fine go home. But I wasn’t told that. I was dilating and contracting somewhat regularly, I was in preterm labor. They told me I would be going for my c-section that day but they also decided to try a medication to slow contractions. Over 32 weeks this medication doesn’t always work but we figured it was worth a shot. And it was, as it slowed things down enough to have them cancel the c-section and just admit me overnight for monitoring.

3D Ultrasound photo of Timothy's face two weeks before he was born.
Timothy the Tank.

Things stayed calm and I even got to have a 3D scan of my cute chunky little man before I was sent home where the ultrasound tech affectionately gave him the nickname “Timothy the tank” haha. He was weighing an estimated 7 pounds already which is what they suspected was putting me into early labor.

My OB decided we should just accept the fact he was probably making an earlier than anticipated entrance (definitely wouldn’t be making my scheduled c-section for April 24th) and that maybe I wanted to consider a new birth plan just in case. Choosing to try a vaginal delivery would maybe buy us more time, even in hours, if we went into preterm labor again.

I wasn’t sure as I was scared from things I had read about trying to have a vaginal delivery less than 18 months after a c-section but the idea of an easier recovery and most importantly the chance to actually hold my baby before he was whisked off to the NICU was appealing to me. James and I discussed the idea and concluded that I would decide if I wanted to try in the moment.

We also decided to move our maternity photos up a couple weeks, just in case. We moved them up to March 30th. I would be 35 weeks and 2 days then, and I had Charlotte at 35 weeks and 3 days. So it felt safe.

Photo from our maternity shoot. James and I are standing beside each other with a hand on my belly. Hailey and Charlotte are holding hands and walking towards us.
Family of Four.

I never did maternity photos with my other kids but it was a request I had for my last baby. I wanted to have them to remember that time. The day was really fun, I did my hair and make up, I got the girls all cute, and we went to the park and captured this special time in our lives. There were some jokes that the walking was going to put me into labor but I was feeling really good, no contractions, just enjoying time with my family of 4. Until we got back home…

Around 6 in the evening the contractions started again. Like St.Patrick’s Day but stronger. I got myself into a warm bath trying to ease the discomfort but I knew it was time. Although I was trying to convince James that it wasn’t, I wasn’t ready yet, I didn’t want to face the NICU again, it couldn’t be time. But my contractions were coming every 4 to 5 minutes and were intense. So we called my sister to come over for the girls, and headed to the hospital.

When I got there I was 4 cm and they knew there was no stopping it this time. And as discussed, in the moment I decided to ask if I could try to deliver without a c-section. As long as I could get an epidural because OUCH. I was told they actually prefer that with VBAC (vaginal birth after cesarean) in case it needs to become a c-section urgently so we signed the papers agreeing to the plan. And moved into L&D.

An added benefit of not having a surgery was that I could have two people in the delivery room with me. So we called my mom, who was fairly bummed she wasn’t going to be there, and had her join. My mom has been there for all of my deliveries.

Labor hurts a lot, in case no one has told you that. And due to a busy night on the ward I was waiting hours for my epidural, at which point I really regretted my choice (if I had a c-section he would be out by now!). But eventually it was my turn and after missing it twice (not a fun feeling) he got it in place and I could finally breathe a little. The hours ticked by, and after 2 am the Doctor came in to check me. She said I was about an 8 but if she popped my water it might help things along. Alright. She broke my water and started to leave the room but had to turn right back around, it was time to push.

I had only begun pushing when there started to be some heart deceleration’s in Timothy. They told me if I didn’t get him out in the next two pushes we might need to consider switching to a c-section. No way was that happening. I did not go through these last several hours of pain just to end up with a c-section still. And so I did it. I got him out in 8 minutes of pushing and behind him a tidal wave of extra fluid (RIP to James’ shoes haha).

And then I finally got to hold my baby boy. Born on March 31st 2019 at 2:43 am. At 35 weeks and 3 days just like Charlotte, and weighing 6 lbs 10 oz just like Hailey. He was perfect. He is perfect.

Photo of Melissa holding a newborn Timothy with James smiling down at him beside her.
Meeting our baby boy.

Timothy Edward.

Thank you for reading more about our journey!

Number Four.

This is not a pregnancy announcement.

This is all I have left.
Photo of a newborn hat that says "future jedi" with a first response pregnancy test on top with 2 dark pink lines
Baby #4

For only two weeks my body was making a home for another baby. A baby we originally never thought we would have. Number four.

And then all of the sudden it was gone. And although I’ve lost others before this, the pain, heartbreak and guilt swallowed me whole.

See I was terrified when I found out I was pregnant. I did this weird mixture of hysterical laughing and bawling.

I had thought I might be pregnant after a random Thursday where I just couldn’t stop crying… but I didn’t actually believe the test would be positive. And so clearly positive, a whole SIX days before my period was even due.

I thought for sure this one was here to stay.

I was too scared to let myself show any excitement. Scared because although we had decided we wanted a fourth it wasn’t supposed to happen yet. Scared because I knew even people in our circle would question and judge our decision to expand our family. Scared what a baby would mean for Timothy at this age. Scared that this was my last shot at this and I wanted to do it all perfectly (which I already felt like I was failing from my initial response). Scared because we had a loss in December and I couldn’t help but feel a tinge of nervousness anytime I went to pee.

But through the scared and nervous emotions we began to plan. We discussed items we wanted this time (like a bassinet). We talked about baby names. We gave ourselves a pat on the back for buying a mini van. We ordered a little rainbow newborn gown. We talked about hospitals and doctors and logistics. We talked about how old we would be when all four of our kids had graduated.

And then it was gone. The conversations. The planning. The baby was gone. Those dark pink lines began to fade, a clear sign of the end.

During this process I have struggled with a lot of guilt about some of the negative emotions I had about being pregnant. How can I be sad now when I was scared? Well because I can be. Really it’s that simple. I can feel however I feel and it is all valid.

Because even though I wasn’t super excited yet…I still wanted this baby. And even though I was scared…I still wanted this baby. And even though it was unexpected…I still wanted this baby.

Photo of Timothy sitting on a chair smiling wearing a black t shirt that says "big brother".
Big Brother.

And they were taken from me before I had a chance to say how much I loved them and wanted them to be a part of our family. So I am sharing this today as my chance to say out loud that I loved this baby. I loved it, I wanted it, and I am heartbroken that it is gone.

Photo of a clearblue pregnancy test that says "pregnant 2-3"
Pregnant.

So I will continue to hold on to these little pieces I have left that prove my baby was here for even a little while. Because it was, and if you have been through this before… your baby was here too.

Timothy’s Story

When we found out we were expecting our third and likely final baby I had a lot of feelings. The first feeling was surprise, we had only started trying and I had not expected it to happen that fast. Then there was a tinge of sadness about this being my last time experiencing pregnancy, newborn snuggles, and all of the firsts (I plan to write a deeper post on those feelings later). And of course there was the feeling of JOY because we were about to welcome another little life to our family!

Having had two girls before and collectively having SIX nieces we were super anxious to find out if we would be the ones to add the first boy. After much discussion we had decided we weren’t going to find out the gender and keep it a surprise. Although knowing myself I am not sure why I ever thought I could do that, how could I plan everything without knowing the gender? So I decided to find out the gender on my own at a private ultrasound. As soon as I found out I was expecting a boy I couldn’t contain my shock and called my sister instantly. There was a couple hours that afternoon I toyed with the idea of not telling my husband and letting it be a surprise for him but I thought yeah right and told him as soon as he was home. I think it took a couple days for him to believe me since he had no idea I was even getting the ultrasound. Soon enough we were planning the batman theme room.

The rest of my pregnancy went fairly smooth, especially in comparison to my high risk pregnancy with Charlotte. That is until 33 weeks and 6 days when I started having really painful contractions and ended up in preterm labor. But luckily we were able to receive some steroid shots for his lungs and a medication to help stop the contractions. We made it another week and a half longer before he couldn’t wait any longer to make his grand entrance at 35 weeks and 3 days.

Sleeping newborn baby wrapped in a blanket wearing a blue and white hat that says "Timothy".
Brand New

Timothy Edward was born March 31 2019 at 2:43am. He weighed a whopping 6 lbs 10 oz even as a 35 weeker. We chose his names after my brothers Tim and Ed who have passed away.

Ever since day one Timothy was such a special presence in our lives and the perfect puzzle piece to complete our family. He instantly gained the love affection of his two big sisters and everyone else who met him.

Life for our family was hectic with three kids and two under 2 but we were managing and loving all the memories we were making.

When Timothy was about 6 weeks old we were at my parents’ house for dinner and my mom mentioned to me that the way he was moving his eyes seemed off. I brushed it off as a weird baby thing but it got me thinking. The next few days I went into panic mode at home when I would see him do odd eye movements. I spent hours upon hours staring at him trying to get him to stare back and he never would. A fleeting thought of “what if he is blind?” crossed my mind but after some googling and talking to my husband we concluded that at 6 weeks old it’s too soon to say whether or not a baby should be focusing on you so we left it.

About a month later I took him to the doctor for a general check up and that is when everything changed. The doctor instantly noticed his eye movements and asked me if I wanted him to call me an ambulance. I was confused, scared, and alone at the doctor’s office with all three kids. I asked him if there was something serious going on and he just said that he will write me a note to take into the Children’s Hospital that day once I had a chance to arrange childcare.

I took him in and we were taken to the back almost immediately. They told me they were concerned about seizures and we would need to see a neurologist in the next 48 hours. After a slightly abnormal EEG we were put on seizure medication and referred to an ophthalmologist because they were also concerned about his lack of focus at now 3 months old.

Baby boy 3 months old wearing a yellow and white striped outfit. He is sucking on a blue soother. There are wires taped to his head with white bandage wrapped around them.
Timothy getting his EEG

The days between appointments felt like weeks and the weeks waiting for more tests felt like months. Finally after a second EEG and an MRI we were told they no longer believed it was seizure activity and that his eye movements were likely solely related to his eyesight. We were taken off the seizure medication and now we just had to wait to find out what was going on.

When we finally (a couple weeks later) saw the ophthalmologist it only took him 10 seconds of looking into Timothy’s eyes to tell us there was definitely a retinal issue and that we would need to go for further testing with a specialist 3 hours away. He told me Timothy wasn’t focusing on anything, tracking, or reacting to light as he should. He also said he couldn’t diagnose for sure but Timothy likely had something called Leber Congential Amaurosis or LCA.

We waited three months to see the specialist and receive the testing that confirmed the diagnosis of LCA but I had known it was true from the first mention of it. We won’t know for sure what Timothy has for vision until he can tell us but due to his lack of response it is expected that he has no usable vision and little to no light perception.

Right now we are still awaiting the results of the genetic testing to tell us which gene is affecting Timothy and get any information we can from that. But overall we know that there is not much available for treatment of genetic retinal conditions and currently there is no available treatments for LCA in Canada.

7 month old baby boy smiling with his hand in his mouth.
So sweet.

In these few months of knowing Timothy is blind our world has shifted and changed completely. We decided to dive right into learning everything we can in order to help Timothy grow up safe, strong, supported, and independent. Timothy is the sweetest baby with the biggest smile and the loudest giggles. He has brightened up our entire life with his presence and shown us a love deeper than we knew before. His story may have some twists and turns in it but we wouldn’t have it any other way.